Friday, April 17, 2015

Help my friend

Annissa Yahnke

http://www.gofundme.com/4t7h6c. ... Even just sharing on your social media can help greatly. Both boys had muscle issues that make it difficult to walk long distances (even short ones), getting one push chair would be amazing for both of them to use when needed.

Monday, March 16, 2015

The Boy That Proved Doctors Wrong, Noah

13 years ago Noah was born with Mosaic Trisomy 16.
There are zero known cases where a child with Trisomy 16 has survived, infact, most pregnancies resulting in a Trisomy 16 baby end before the first trimester and is said to be the leading cause of miscarriage (according to some literature.) There are less than 100 known cases world wide of surviving children with Mosaic Trisomy 16. Now Noah's parents was given the sad option to end their pregnancy after finding out that their new born son would have mosaic trisomy 16. As you can tell that Noah's parents decision was the right one cause he is still alive and breathing well. What makes me mad are the doctors, I know its their job to let parents know the sad facts BUT when you are told that IF by some MIRACLE he came home, he would be so mentally and physically delayed it "wouldn't be worth it" .... Who the hell are doctors to tell you what's worth it and what is not. I'm writing this with some help from his mom's webpage myuniqueflowers.blogspot.com because I believe supporting kids with handicaps. Then again when you look at Noah you can NOT tell he has any. He is an amazing 13 year old boy who has the fighting power to over come anything that may be put in front of him. When I first started reading about his story on the blogspot, I was amazed and inspired big time, the surgeries, all this different help to get him to where he is today and he did it with a smile because of the fact that he proved all his doctors wrong. Not only am I 110% behind Noah but I'm also 110% behind his parents and his siblings. Not to long along standing in a grocery store line, some putz was complaining about his new neighbors kids had all, I'll use handicap cause I dont like the disabled cause no matter what u can do it, anyways after he saw my head shake in discuss he ask me how would like it if they moved next to me, I didn't miss a beat as I thought about Noah's family and said, invite them over, get to understand what's going on, treat them all like family, show them that they r still good people out there that cares. Obviously he didn't like my answer cause of the evil look I got but I got my answer across. As you can see from the board that I did up for Noah (I'll being doing a couple more for his siblings) its my way on showing my love, full support for them. I was fortunate to start chatting with his wonderful mom on google+ and I got to know more and more about the MT16 and other handicaps. Let's ALL start learning about the MT16 and start supporting this wonderful family, let them know that you also care by visiting their website myuniqueflowers.com

Sunday, February 15, 2015

Hey Hey Hey :-)

First off I feel like a moron cause I have no clue what the hell to write lol ok that is not going to be my first post, however I want to give some people a special shout out to my Jersey brothers from another mothers Darryl and Dean, love you guys. My Sister Ricki S also from Jersey, talk about great memories, I miss them all a great deal. Since I'm rolling with the special shout out, since learning this "Blog Thing" and how all walks of life's blogs about anything and everything, I hope they will read mine too lol anyways, I had the honor of small talking with myuniqueflowers.blogspot.com who together I believe has 5 awesome kids (4boys and 1 girl), I believe its 2 boys who has autism (my memories so please forgive me if I'm wrong) through there pictures, even though with the disabilities u can tell how happy, loved and inspirational those kids are and also what kind of mom and dad they are so lucky to have. You guys are Awesome!! About October or November without my knowing, I learned about a disease known as Mito disease. This disease flat out sucks cause if I remember correctly it has to do with something like not enough engery going through ur body and brain and it wipes you out and may effect ur bladder and or bowel. Its like let say, your out on a picnic with ur family and ur doing good for an hour or 2 and now u need to be carried back to the table cause ur wiped out, wheelchairs is a big help for that child too. Also (not sure if its all kids with Mito that has this) they have a g-tube or J-tube forget which it is. I may have gotten this all wrong or mixed up which honestly is a possiabilty, (sorry again) but even though its been close to a year since they last posted but check out Life With Jack at jackryan4.blogspot.com and I promise, you will learn a lot. I love that family. Well feel free to email me, I love reading what other thinks and so forth. I'm sure sooner or later I'm just going to have a "BITCHING BLOG" where I'm just going to let it all out on things that piss me off. So one day if I have any followers or not, if ur a newbie and u see a post that has me going off, I'm not always like that, I hold it in for a while and then it just all comes out and I'm done with it for a while lol I'm blabbing away Be cool and safe ya'll

deemertommy80@gmail.com